After a veritable marathon of tests including one and a half hour of MRI nightmare I have the latest results.
But first things first:
Early morning and no breakfast – that makes me cranky. Half a year ago I wouldn’t have cared at all but the morning of the tests were occupied with me planning out my meals (minus my beloved oatmeal-protein-berry breakfast because they wanted me to be “sober” for the bloodtests”). We had a long day ahead and Henning brought some books to occupy himself while he had to wait for me. I don’t know what I would do without him 🙂
I hate getting IV’s placed but after all the hospital visits I even got used to them and the nurse was quick and experienced. It still did hurt though!
I swear they took buckets of blood and I was worried I might get dizzy, seeing I had no breakfast and all..
After the blood-tests off we went to the MRI area where the familiar buzz and bumping of the machine greeted us (almost like an old friend).
I was strangely excited but also nervous since this was the very first MRI test I was taking because it was time to do so and NOT because I had bad symptoms. Never feeling better, I was pretty certain nothing could go wrong even though I had been battling the heat a bit and some old neurological issues were surfacing.
I’ve had MRI’s which took close to 2 hours so I was ready to lay still for 1.5 listening to the buzzing and clanking of the big tube around me.
The first few minutes are always a bit scary since I am frantically trying to do a check if I really didn’t miss anything metallic on, in or around my body, followed by nightmares and horror scenarios of what would happen if some metal piece snack in and what gory mess it would lead to.
As always, everything was fine and I started to concentrate on the familiar patterns of noises. I find it to be a more healthy thing to do then starting to count seconds..
The first batch went fine – after a looooong while the assistant took me out and injected the contrast agent and said something about “10 more Minutes”. I was relieved since my bladder started to refuse to spend more time in the tube and I thought, “ok 10 more Minutes, I can do that”. Unfortunately, after they pushed me back in..nothing happened. No noise..no movement..Ok, not good..
The assistant came back after what felt 10 to 15 more minutes and apologized that the machine seems to have problems. Luckily around 5 to 10 more minutes and they fixed whatever was wrong (probably went to the pet shop to buy some new hamsters). In the meantime the familiar feeling of the contrast fluid distributing in a heavy rush through my veins set in. I am always getting dizzy from that stuff. The effects range from “funny roller-coaster ride” to “OMG someone stop the Washing Machine and get me out of here!” to “ok, gonna pass out now”. This time it was more of a “hammock on high sea” experience, not too bad to handle.
So, finally all done and the assistant pulls me out and proceeds to take away all the fancy stuff they put in place to stabilize my head and spine but obviously the head piece strapped over my face doesn’t want to come off. He keeps apologizing and pulling with all his strength when that thing comes up and some metal piece loosens and falls flat on my forehead. BAM!
I had to laugh (despite the fact that it did sting quite a big) and he couldn’t stop apologizing.
The same day we went back and I had a quick talk with the general Neurologist at the hospital. Tomorrow I will discuss the results from all the tests with my own Neurologist but the verdict so far is as follows:
- NO new lesions in my brain or spine
- NO active lesions in my brain and spine (for the first time)
But the most important part that made me actually tear up was the fact that the doctor (dare I say a bit puzzled himself) mentioned that it seems that the old scarrings show signs of improvement. I honestly didn’t even know that was possible (even though Henning mentioned that he read about this but that it normally takes much longer for this to happen if at all).
Well, I hopefully get more information tomorrow evening – for now I am a really, really happy camper 🙂