I felt really honored as I was the first at least in Greece (not sure if in Europe) to have had a new device to find CCSVI specially for MS patients, tested on in Doctor Liasis Praxis here in Athens. I was also able to talk to the scientist who developed this particular ultrasound device together with Dr. Zamboni, the doctor who first found a link between MS patients and the CCSVI condition.
And you know the most funny part about this? All this was made possible because I played EQ2 a few years back and a friend of mine I knew from those times linked me the article about a year ago which made me look for a doctor who could check for this condition out of sheer curiousity. Who says MMOs are not good for you? 😉
I have to add though, when it comes to CCSVI studies in MS patients and how I am reacting to them, I am cautious. Sadly there are currently two extremes fighting it out against each-other which is counter-productive to the study and its development as a whole. Don’t you just hate politics?
One side is trying to push it way too hard and already labelled the treatment of CCSVI in MS patients a cure while not even Dr. Zamboni himself would label it as such. On the other hand some health professionals and societies cry charlatan and “money grabbing” while immediately shutting down any kind of inquiries some patients would like to pursue.
Of course it doesn’t help that money hungry vultures indeed start to offer the so called liberation treatment (in which clogged veins are freed up) just for the sake of making money with desperate patients and on the other side there are for sure suits sitting in the pharmaceutical companies already worried about losing their golden geese such as betaferon treatments.
While researching the topic myself I also noticed that the numbers thrown around on off-sites did vary amazingly up to 100% of the tested patients had clogged veins which is just simply wrong. The lowest number which was mentioned in the actual study papers was over 80%. So please, take the whole topic with a grain of salt and be cautious if you look into this.
Zamboni emphasizes that the Liberation Treatment does not make people in wheelchairs walk again. Rather, it seems to stop the development of further MS attacks, and in some cases, improves movement and decreases the debilitating fatigue that are the hallmarks of MS.
The foundation that has sponsored Zamboni’s research, the Hilarescere Foundation, also urges cautious restraint.
“We can’t give the illusion to patients that this is a guaranteed treatment and it is easy. This is not right. And we have never done this,” says Hilarescere President Fabio Roversi-Monaco. “We don’t say this is a cure for M.S. We only say that research is advancing, and there is encouraging data but we are waiting for more conclusions.”
As a matter of fact, after talking to the Italian specialist who invented and tested the new Ultrasound device on me here in Athens, it was very clear that everyone involved in the project (including Dr. Zamboni himself) clearly states that there need to be more long term studies to follow up on the treated patients. As far as the tests went: I do show some clogging that I have to further pursue and keep an eye on, yet I am not sure if I am ready to put myself under a probably really expensive treatment just now, we will see.
Lets say I am carefully optimistic about the future of MS research and treatments – cure? Probably not but time will tell 🙂