I hate making posts about negative things because they are, if we are honest, always perceived as whiny and unnecessary. Most people like to read about positive uplifting things which is only human 🙂
However, today I am making a small exception, so be forewarned!
It’s so easy to forget about an illness if you do well. It’s quite mind-boggling how much the human body/mind can take and how fast we can get used and adapt to a situation. Even the most annoying symptoms can get so familiar that we don’t think of them as part of a bigger problem. I haven’t had an actual episode in like 2 years and even the tri-weekly Rebif injections are just everyday life for me that I don’t even connect them with MS any more. It’s just something I do, a routine I have gotten used to. I am feeling like a live a completely normal life which is great, right?
So, yesterday was one of these days when I forgot to take the Advil after I took the medicine before going to bed. It totally slipped my mind for whatever reason..
In the middle of the night I wake up with the usual, frankly quite horrible side-effects that Rebif still has on me:
- cold sweats and chills that shake me every few minutes
- joint pain that is so bad it rivals the most horrid rheumatic pain and even breathing feels like a chore
- horrible headache
- terrible ear pain
- stomach cramps
- feeling my hands and feet burning like ice despite them being normal temperature
Hang in there, Kyena.
It sounds – apart from this little wake-up call – that you are doing really, really well. It’s a great thing to read your thoughts cause your way of thinking is so completely positive.. and I really respect your attitude as a whole.
Yeah I am doing fine, thank you and I hope the same is true for you too Alex 🙂
Love you Tascha, your attitude and strength are an inspiration.
I am a rare guest here tbh, but after reading your latest update i felt i had to cheer for you! Knowing you since EQ2 launch i always saw you as a person on top of everything. I can’t mention a game that you haven’t already tested and have a full understanding of. Your passion really inspired me not just in gaming but in life in general!
Hi Tasha, I’m on rebiff too. I take a motrin 800 and a Benedryl on “shot nights” but I still experience what you do until 10am or noon the next day. If I forget to take my cocktail, I’m screwed for the whole next day. I talked to my doic about it and he suggested “preloading” with the Motin 1 hour before the shot and then again 2 hours after and before bed. dion’t make any difference for me. It’s a bummer but hey, it is what it is right? Life goes on and we just make adjjustments in our attitude to deal with it.